Luna and Rosana's story
I'm Rosana, Luna's mother. My daughter is 2 years old and lives with a rare genetic disease called severe epidermolysis bullosa — her skin is so fragile that any friction turns into a blister, and every blister turns into an open wound.
Luna feels pain even when the wind touches her skin. Every dressing change is a full hour of crying. Every new injury means more pain — and care that I cannot afford on my own.
The medication that can slow the disease costs $ 6 millones a month and was denied by the government, even with every medical report submitted. Without it, Luna's immunity stays low and her body remains exposed to serious infections.
There were 4 hospitalizations in 3 months. With every crisis she goes back to the hospital, on an oxygen mask, and I go back to the same chair beside the bed, not knowing whether this time will be different.
The treatments, dressings and supplies Luna needs already exceed $ 48 millones. Today we depend on donations to keep up even the most basic daily care.
Rosana's appeal: "I'm not asking for a miracle. I'm asking for one day without pain for my daughter. Your donation is exactly that: a day without pain in Luna's life."
With your help, Luna continues her treatment and gains the pain-free days she deserves to live.
